Alivia's Fundraisers and Marrow Drive

This site will provide detailed info on fundraisers and events in support of Alivia and her family. Alivia has been diagnosed with a unique form of leukemia and will likely undergo a bone marrow transplant. We are all here to show support and do whatever we can to help!

10.06.2006

Friends of Alivia Haughery Fundraiser Letter


There are two events underway: fundraising and planning for the Bone Marrow Drive. Everyone is eager to help and show support - the outpouring of generosity is amazing.

There will be more info to follow on the drive itself. Several things need to happen before the official announcement can be made. But if you can, tentatively mark your calendars for October 28 and there will be more information as soon as it is available.

In the meantime, we are seeking donations primarily from businesses to donate to the Friends of Alivia Haughery Fund, which is a named, restricted fund at The Marrow Foundation. These funds will be used to cover costs for the drive, including the tissue typing.
Our goal is to raise $5000 in the hopes that we can add 200 new donors to the registry in Livi's name. It could be that there is already a match in the registry for her - or maybe not - but either way, we are committed to the drive. Drop me an email and I'll forward the document to pass along to friends and businesses. (If any super bloggers out there can tell me how to post a .doc or .pdf - that would be cool!)

This is not a plea for individual donations. Unless of course, you've got cash to throw into an end-of-the-year tax write off :) If you would be approaching business in the Lancaster area, just drop me a note as to avoid repeats. The bracelets, the rugby team fundraiser and several others are underway as well. The family may have other medical expenses that can be covered with those fundraisers.

More info to come!

posted by Rachel @ 12:24 AM  

3 Comments:

  • At 10:42 AM, Anonymous Anonymous said…

    hey,
    Im a little bit confused...can we donate through just any place? do we tell you and your setting up your own donation drive? what are the steps if i want to donate? i found a websight that is about the bone marrow donations, but i dont know if Im soposed to wait and donate in Livi's name. anyways, i think im just a little slow on the uptake, but if you could explain it to me that would be wonderful. sorry about this...

    and thank you sooo much for setting this up. i know it is such a huge blessing to them. im so glad that your doing this and that we get to be involved...

    thanks,
    rebekah

     

  • At 11:28 AM, Blogger Rachel said…

    This comment has been removed by a blog administrator.

     

  • At 11:31 AM, Blogger Rachel said…

    Hi Rebekah-
    You can donate bone marrow any time at any donor center you like.
    We will be setting up a bone marrow drive in honor of Alivia in the Lancaster area. On this day, people can come out to the location and take care of everything all at once to join the registry. But you don’t have to wait until the drive to do it – you can take care of it on your own if you prefer.
    We are soliciting donations that will cover the cost of the tissue typing for people who come to the bone marrow drive in Lancaster. If you were to go on your own to a donor center, you would be expected to cover the cost yourself.
    Livi’s doctors haven't done an initial search to see if she has a potential match. Whether you donate on your own or at the bone marrow drive – it is the same registry that is searched.
    And when you sign up to be a donor, you can’t just say you want to be a match for Livi – you have to volunteer to be a match for anyone on the registry. It could be that there is a match for her already…which is why we can’t say that the bone marrow drive is ONLY to find Livi a match.
    If you are looking for a donor center to go on your own, visit:
    http://www.marrow.org/ABOUT/NMDP_Network/Donor_Centers/US_Donor_Centers/dc_list_by_state.pl
    The steps to donate can be found here:
    http://www.marrow.org/HELP/Join_the_Registry/index.html
    Hope that helps.
    I’ll post some more general information on the blog to avoid confusion.
    Let me know if you have any other questions I can help with. It’s great that there are so many people who are willing to donate – and so many people who love the Haugherys!
    Regards,
    Rachel

     

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